parenting

If your child’s physical difference appears to cause staring or bullying, there are 5 things that parents can do to

Diagnosis comes as a shock, regardless of whether the diagnosis happens during pregnancy, at birth, or at a later time. 

Tips for Doctors When delivering news about the diagnosis of a medical condition such as SA/CRS, the usual assumption is

Here is a collection of resources and connection opportunities for children and teens with SA/CRS. Read a story about growing

                   Dear Parents of Children with SA/CRS, Hello new parents! I know