What is SA/CRS?
Sacral agenesis, lumbosacral agenesis, and caudal regression syndrome are three terms that are often used interchangeably. Sacral agenesis refers to a condition in which the
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What is Sacral Agenesis / Caudal Regression Syndrome?
Visit the iSACRA website at: www.isacra.org Sacral agenesis, lumbosacral agenesis, and caudal regression syndrome are three terms that are often
Read moreFriends of iSACRA on facebook: extended family members and other supporters
Are you an extended family member, friend of an individual with SA/CRS, or other supporter of iSACRA? Thank you for
Read moreHospital Packing List
Check with the hospital’s Child Life department for kid-friendly games, activities, and entertainment. Some of these departments also lend books,
Read moreThe Power of Language
Have you ever considered how much the words we use demonstrate our attitudes and influence the attitudes of others? If
Read moreTalking with Your Child About Bullying
If the physical differences your child has because of the condition of SA/CRS appear to cause bullying or staring, there
Read moreQuestions Parents Ask
Diagnosis comes as a shock, regardless of whether the diagnosis happens during pregnancy, at birth, or at a later time.
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Read moreiSACRA Brochure
Click here to download and print an iSACRA brochure. Use the brochure to help others understand SA/CRS. Bring it to
Read moreBrief Information on SA/CRS
Sacral agenesis, also called by several other names such as “caudal regression syndrome,” is a birth condition in which the lower
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