Saturday, January 18, 2025
Latest:
What is SA/CRS?
What is Sacral Agenesis / Caudal Regression Syndrome?
Friends of iSACRA on facebook: extended family members and other supporters
Hospital Packing List
The Power of Language
The International Sacral Agenesis/Caudal Regression Association
About iSACRA
Mission
A Letter from the President
Board of Directors
Medical Advisory Board
Donate
Privacy Statement and Disclosures
Volunteer
Contact
Medical
Neurology (Treatment of the Central Nervous System and Spinal Cord)
Orthopedics (Treatment of the Musculoskeletal System)
Walking: Possibilities and Perspectives
Billy’s Story: Leg length discrepancy
Jahna’s Story: At-knee leg disarticulation
Will’s Story: Bilateral Vertical Talus and our journey through corrective surgery
Urology (the Bladder and Kidneys)
Neurogenic Bladder Treatments and Procedures
Bladder and Kidney Function Tests and Testing Schedules
Gastroenterology (Treatment of the Bowel and Intestines)
Colorectal Centers
Living Fully with SA/CRS
Adults with SA/CRS, College, Career, and More!
Educational Laws and Advocacy
The Power of Language
Sports, Recreation, and Travel
The Competitive Edge
The iSACRA Sports Gallery
Travel and Exchange Programs for Individuals with Physical Disabilities
Hobbies Give Me Confidence in Myself!
Blogs from Individuals with SA/CRS or Parents of Children with SA/CRS
SA/CRS in the Media
Information & Resources
For Parents
Questions Parents Ask
Hospital Visits and Appointments
Talking to Your Child About Bullying
Our Stories
For Children and Teens
Children’s ebook “My Life with Sacral Agenesis: A children’s story”
10 Good Things about SA/CRS
Meet Some Friends
Summer Camps and Holidays
For Adults with SA/CRS
For Doctors
Unique Considerations for Care and Treatment of Individuals with SA/CRS
Unique Orthopedic Considerations
For Physical Therapy and Mobility Training
All About Wheelchairs and Wheelchair Development Skills
All About Walking
Mobility Videos: Walking, Wheelchair Skills, and Daily Activities
For Teachers
For Coaches
Physically Disabled Athletes at School
“Paralympics” or “Special Olympics”: What is the difference?
Financial Resources
Innovations
Home Modifications
Community Connection
iSACRA Public Facebook Page
JOIN US! iSACRA Facebook Group
Equipment and Supplies Exchange Program
Informational Webinars and Meet-Ups
Webshop
External link to our Cafépress webshop
Understanding the Spine and Spinal Cord
Diagnosis During Pregnancy: Experiences and Research
Diagnosis at Birth: Experiences and Research
Diagnosis in Later Years: Experience and Research
Chart of Characteristics of SA/CRS
Vocabulary and Abbreviations Explained
Height and Weight Chart
Is SA/CRS a genetic condition?
VACTERL and SA/CRS, one family’s experience
IRS Determination Letter
